Comments
yourfanat wrote: I am using another tool for Oracle developers - dbForge Studio for Oracle. This IDE has lots of usefull features, among them: oracle designer, code competion and formatter, query builder, debugger, profiler, erxport/import, reports and many others. The latest version supports Oracle 12C. More information here.
Cloud Expo on Google News

2008 West
DIAMOND SPONSOR:
Data Direct
SOA, WOA and Cloud Computing: The New Frontier for Data Services
PLATINUM SPONSORS:
Red Hat
The Opening of Virtualization
GOLD SPONSORS:
Appsense
User Environment Management – The Third Layer of the Desktop
Cordys
Cloud Computing for Business Agility
EMC
CMIS: A Multi-Vendor Proposal for a Service-Based Content Management Interoperability Standard
Freedom OSS
Practical SOA” Max Yankelevich
Intel
Architecting an Enterprise Service Router (ESR) – A Cost-Effective Way to Scale SOA Across the Enterprise
Sensedia
Return on Assests: Bringing Visibility to your SOA Strategy
Symantec
Managing Hybrid Endpoint Environments
VMWare
Game-Changing Technology for Enterprise Clouds and Applications
Click For 2008 West
Event Webcasts

2008 West
PLATINUM SPONSORS:
Appcelerator
Get ‘Rich’ Quick: Rapid Prototyping for RIA with ZERO Server Code
Keynote Systems
Designing for and Managing Performance in the New Frontier of Rich Internet Applications
GOLD SPONSORS:
ICEsoft
How Can AJAX Improve Homeland Security?
Isomorphic
Beyond Widgets: What a RIA Platform Should Offer
Oracle
REAs: Rich Enterprise Applications
Click For 2008 Event Webcasts
SYS-CON.TV
Top Links You Must Click On


NORD Launches Campaign to Educate State Legislators About Challenges of Living With Rare Diseases

Patient Advocates and Supporters to Host State House Events for Rare Disease Day 2013

WASHINGTON, Dec. 11, 2012 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) has launched a nationwide campaign to help leaders of rare disease patient organizations – and those who support them – educate their state officials for Rare Disease Day 2013 (Feb. 28, 2013).

(Logo: http://photos.prnewswire.com/prnh/20110719/DC37656LOGO-b)

The campaign is just one of many activities NORD will oversee as the national sponsor of Rare Disease Day in the U.S.  Rare Disease Day is observed globally each year on the last day of February.

"It's very important for officials at the state level to understand what it's like to live with a rare disease," said NORD President and CEO Peter L. Saltonstall.  "Key decisions affecting the lives of rare disease patients and their families on issues such as newborn screening and medical foods are made at the state level.  We want to ensure that those making these decisions have access to good information."

There are nearly 7,000 diseases considered rare in the U.S., affecting approximately 30 million Americans.  NORD will work with patient organizations, medical researchers and clinicians, companies developing treatments for rare diseases, and others to share key messages with legislators in states across the U.S.

The project is modeled on a successful Massachusetts State House Event organized by Blair Van Brunt of the Shwachman Diamond Syndrome Foundation and Sarah MacDonald of the Massachusetts Biotechnology Organization.  Van Brunt and MacDonald are working with NORD to develop resources for people interested in organizing similar events in other states.

NORD will publicize the project through the national Rare Disease Day website (www.rarediseaseday.us).  Individuals interested in organizing events in their state may sign up through the website to receive guidance from NORD, as well as help in connecting with others in their state who have also expressed interest.

Van Brunt and MacDonald will participate with NORD in teleconference training sessions for individuals interested in hosting state house events, with the first of these scheduled for this week.  For information about hosting a state house event, go to the RareDiseaseDay.US website.    

SOURCE National Organization for Rare Disorders (NORD)

About PR Newswire
Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Enterprise Open Source Magazine Latest Stories . . .
The OpenNebula Project has just announced the Beta release of vOneCloud, a CentOS Linux virtual appliance for vSphere that contains all required OpenNebula services optimized to work on existing VMware vCenter deployments. vOneCloud is for companies that want to create a self-service c...
Code-named “Fox Fur”, the twenty-third release of OpenNebula is available today with complete support to build clouds on existing VMware environments. OpenNebula 4.10 seamlessly integrates vCenter virtualized infrastructures leveraging the advanced features such as vMotion, HA or DRS s...
Let’s say we developed an application and plan to move our app to production on Amazon Elastic Cloud (EC2). Our application, in the form of a webapp, was developed using eclipse and we have tested it on Tomcat running locally. Now, we may want to test our app on an EC2 environment befo...
"Our premise is Docker is not enough. That's not a bad thing - we actually love Docker. At ActiveState all our products are based on open source technology and Docker is an up-and-coming piece of open source technology," explained Bart Copeland, President & CEO of ActiveState Software,...
This past week the Appcore team got the opportunity to attend one of the industry’s leading cloud events, Cloud Expo in Santa Clara, CA. We spent a lot of time interacting with attendees at the exhibit portion of the event. As a software company with a sole commitment to CloudStack, we...
As cloud gives an opportunity to businesses to buy services externally – how is cloud impacting your customers? In his General Session at 15th Cloud Expo, Fabio Gori, Director of Worldwide Cloud Marketing at Cisco, provided answers to big questions: Do you see hybrid cloud as where th...
Subscribe to the World's Most Powerful Newsletters
Subscribe to Our Rss Feeds & Get Your SYS-CON News Live!
Click to Add our RSS Feeds to the Service of Your Choice:
Google Reader or Homepage Add to My Yahoo! Subscribe with Bloglines Subscribe in NewsGator Online
myFeedster Add to My AOL Subscribe in Rojo Add 'Hugg' to Newsburst from CNET News.com Kinja Digest View Additional SYS-CON Feeds
Publish Your Article! Please send it to editorial(at)sys-con.com!

Advertise on this site! Contact advertising(at)sys-con.com! 201 802-3021




SYS-CON Featured Whitepapers
ADS BY GOOGLE