yourfanat wrote: I am using another tool for Oracle developers - dbForge Studio for Oracle. This IDE has lots of usefull features, among them: oracle designer, code competion and formatter, query builder, debugger, profiler, erxport/import, reports and many others. The latest version supports Oracle 12C. More information here.
Cloud Expo on Google News

2008 West
Data Direct
SOA, WOA and Cloud Computing: The New Frontier for Data Services
Red Hat
The Opening of Virtualization
User Environment Management – The Third Layer of the Desktop
Cloud Computing for Business Agility
CMIS: A Multi-Vendor Proposal for a Service-Based Content Management Interoperability Standard
Freedom OSS
Practical SOA” Max Yankelevich
Architecting an Enterprise Service Router (ESR) – A Cost-Effective Way to Scale SOA Across the Enterprise
Return on Assests: Bringing Visibility to your SOA Strategy
Managing Hybrid Endpoint Environments
Game-Changing Technology for Enterprise Clouds and Applications
Click For 2008 West
Event Webcasts

2008 West
Get ‘Rich’ Quick: Rapid Prototyping for RIA with ZERO Server Code
Keynote Systems
Designing for and Managing Performance in the New Frontier of Rich Internet Applications
How Can AJAX Improve Homeland Security?
Beyond Widgets: What a RIA Platform Should Offer
REAs: Rich Enterprise Applications
Click For 2008 Event Webcasts
Top Links You Must Click On

NORD Launches Campaign to Educate State Legislators About Challenges of Living With Rare Diseases

Patient Advocates and Supporters to Host State House Events for Rare Disease Day 2013

WASHINGTON, Dec. 11, 2012 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) has launched a nationwide campaign to help leaders of rare disease patient organizations – and those who support them – educate their state officials for Rare Disease Day 2013 (Feb. 28, 2013).


The campaign is just one of many activities NORD will oversee as the national sponsor of Rare Disease Day in the U.S.  Rare Disease Day is observed globally each year on the last day of February.

"It's very important for officials at the state level to understand what it's like to live with a rare disease," said NORD President and CEO Peter L. Saltonstall.  "Key decisions affecting the lives of rare disease patients and their families on issues such as newborn screening and medical foods are made at the state level.  We want to ensure that those making these decisions have access to good information."

There are nearly 7,000 diseases considered rare in the U.S., affecting approximately 30 million Americans.  NORD will work with patient organizations, medical researchers and clinicians, companies developing treatments for rare diseases, and others to share key messages with legislators in states across the U.S.

The project is modeled on a successful Massachusetts State House Event organized by Blair Van Brunt of the Shwachman Diamond Syndrome Foundation and Sarah MacDonald of the Massachusetts Biotechnology Organization.  Van Brunt and MacDonald are working with NORD to develop resources for people interested in organizing similar events in other states.

NORD will publicize the project through the national Rare Disease Day website (  Individuals interested in organizing events in their state may sign up through the website to receive guidance from NORD, as well as help in connecting with others in their state who have also expressed interest.

Van Brunt and MacDonald will participate with NORD in teleconference training sessions for individuals interested in hosting state house events, with the first of these scheduled for this week.  For information about hosting a state house event, go to the RareDiseaseDay.US website.    

SOURCE National Organization for Rare Disorders (NORD)

About PR Newswire
Copyright © 2007 PR Newswire. All rights reserved. Republication or redistribution of PRNewswire content is expressly prohibited without the prior written consent of PRNewswire. PRNewswire shall not be liable for any errors or delays in the content, or for any actions taken in reliance thereon.

Enterprise Open Source Magazine Latest Stories . . .
It is no surprise that OpenStack has evolved into a widely adopted cloud management framework. As it hurtles on a trajectory of rapid growth, a new breed of demands are making themselves felt – demands that a mature platform of this nature and scope must satisfy. One such requirement i...
The combined notions of open source and the ‘community contribution’ model of collaborative software application development are, of course, not new. The history of open source is actually traced back to early software exchanges between universities driven by academic principles of kn...
Test-driven development (TDD) has been around for a while now. Behavior-driven development (BDD), a comparably recent methodology, emerged from the practice of TDD and could reasonably be called a narrower application of TDD. The TDD process allows a developer to use a failing unit t...
Using any programming framework to the fullest extent possible first requires an understanding of advanced software architecture concepts. While writing a little client-side JavaScript does not necessarily require as much consideration when designing a scalable software architecture, t...
Developers generally like to share their code, and many of them do so by open sourcing it on GitHub, a social code hosting and collaboration service. Many companies also use GitHub as a convenient place to host both private and public code repositories by creating GitHub organizations ...
Cloud computing delivers on-demand IT resources that provide businesses flexibility. The challenge is the cost and complexity of cloud security compliance (PCI, HIPAA, FFIEC). Raxak Protect automated cloud security enables cloud apps to be deployed quickly and cost-effectively. Get the...
Subscribe to the World's Most Powerful Newsletters
Subscribe to Our Rss Feeds & Get Your SYS-CON News Live!
Click to Add our RSS Feeds to the Service of Your Choice:
Google Reader or Homepage Add to My Yahoo! Subscribe with Bloglines Subscribe in NewsGator Online
myFeedster Add to My AOL Subscribe in Rojo Add 'Hugg' to Newsburst from CNET Kinja Digest View Additional SYS-CON Feeds
Publish Your Article! Please send it to editorial(at)!

Advertise on this site! Contact advertising(at)! 201 802-3021

SYS-CON Featured Whitepapers